This post is to fill everyone in on my latest health update. I will entitle the post, a typical day of hives. So, just to recap. I first noticed hives back at the beginning of January. Initially we thought it was a strep rash because I had these big ping pong sized welts all over my body. After a week or two of these welts I began to think something was seriously wrong. I itched SO bad...at least that's what I thought was itchy (I had no idea!) These hives continued. I would wake up with them, they'd fade during the day, and at night come back with a vengeance.
Around May, I went to the Dermatology Dept. at the University of Utah and they did a biopsy of one of the hives. Basically, they didn't know what was causing them and put me on some medicine called Dapsone (designed to treat Leprosy). It worked for about a month and a half and that's when I ended up in the hospital thinking I had Leukemia because little did we know I was allergic to Dapsone and it wiped out my immune system. After a week in the hospital and every test known to man, the doctors figured out I was allergic to the Dapsone.
After that I had had it with medicine. I decided I would just live with the hives. Well that wasn't a good idea either. About two weeks ago my family convinced me I should go see an allergist, so I made an appointment. In between that time, my parents came down to take Jordan, Ali, and I out to dinner. During dinner I started to itch BAD and I looked over at my mom to tell her I didn't feel good. Well, I looked a lot like I did in this picture but worse. A mouth full of hives, swollen eyes, and swollen lips. My family immediately picked me up and took me out to the car to get to a health center before my throat closed off.
It was kind of a relief to have a reaction like this while I was eating. Because of this upcoming appointment I couldn't take antihistamines prior to the appointment. That is why I reacted so intensely. I thought, FINALLY an answer, I am allergic to food. Who gets excited when they think they are allergic to food? Anyway, the next day I was really careful with what I ate and I reacted again. Jordan's parents were here that night and were really nice and got me an epi-pen just to be safe because this time my throat started to swell.
After that, I decided not to eat for a few days. I ate only a little white rice and apple juice figuring they were pretty bland, right? No, This picture is what happened. I finally went to see the allergist--and not helpful at all. Except that he told me I am not allergic to food, without testing me. He's probably right.
We had a couple tender mercy experiences the last couple of days and found that the hives are probably related to issues with my digestive system since I have colitis. Both are autoimmune diseases. So, we'll see what the gastroenterologist has to say in a couple weeks. I probably need to prepare myself for another endoscopy and colonoscopy.
Basically, I just want to know why I have the hives. The hives, I can live with, it's the peace of mind I am seeking. To know that I can have kids that will be healthy and that the hives won't affect them. Luckily, I can take Zyrtec while pregnant some day if I still have them! I truly am blessed. It's been a long, crazy road, but I thank Heavenly Father every day that I have what I have because so many people are going through things much harder than mine.
There's the update. I have the BEST husband in the world who still thinks I look pretty even when I look like this. What a gem! So the next time you have a bout of hives, give me a call, and I will be sure to sympathize with you!
5 comments:
Hilary,
Well, trials are to help refine us and you seem to be refining....now lets hope they will go away or that a true source will be found. As I mentioned to Jordan, 70% of all chronic hives are GI (gastrointestinal) related. So I have been doing some research again and it leads me back to the GI issues and a couple of tests first...just blood and maybe stool tests. Then depending on those results the treatment is next...and lets hope that works. The treatment are nutraceuticals...so natural stuff mainly. Smile though, you are still pretty and who knows...maybe a pregnancy will cure you of the hives?! (Especially if it was twins!)
hil that was so so so sad i feel bad you do have the best best husband in the whole world
love remi!!!
and mom does to!
You poor girl Hilary!! Those hives look like no fun at all! I hope things gets better and you won't have to deal with them anymore! You look at beautiful as ever though!!! :)
oh hilary i am so sorry that looks so painful. good thing for husbands to help!
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